RARE ACCESS ACTION PROJECT
Providing Education, Advocacy & Access On Behalf of Rare Disease Patients and Families!
RAAP is a coalition of life sciences and patient stakeholders that explores creative policy solutions to address structural issues in access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments that they need.
Patient Stories
RAAP IN ACTION
May 6 2024 - 1 pm (EST) PDAB WEBINAR
August 5-7, 2024 - NSCL Legislative Summit, Louisville, KY
INITIATIVES
“Action” is a key component of who we are and what we do. While think tanks play important roles for advancing science, medicine and policy, the Rare Access Action Project (RAAP) focuses on specific, achievable and measurable campaigns designed to support the rare disease community and its various stakeholders.
NCSL
PDAB
IRA
Patient Engagement Caucus
In the News
Keep up with RAAP
RAAP Events
Upcoming and past events